September 8, 2025 | We’re excited to share a new interview with Pam & Chris Andrews in RARE Revolution Magazine. A huge thank you to Nicola Miller for capturing our story so beautifully.

The article highlights the impact of cyclodextrin (also known as adrabetadex or vts270) for patients with NPC, a form of childhood dementia—and underscores why it’s critical to begin treatment as early as possible, before symptoms appear.

We’re grateful to RARE Revolution Magazine for helping shine a light on the importance of newborn screenings and for sharing our rare journey.

Read the full interview.

"Chasing fireflies"
Chris and Pam with Abby and Belle featured in RARE Revolution Magazine Issue 032