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You can’t imagine watching your child lose
the ability to walk.
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Or talk.
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Or swallow her food.
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You can’t imagine the lack of funding for researchers eager to help.
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You can’t imagine your own child dying by the age of 13.
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But you can imagine a cure.

Your donations fund the research necessary to develop new drug therapies that slow the progression of Niemann-Pick Type C Disease.

With your help, we might even find a cure.
Donation Options

Please consider making a monthly donation.
The cost might be invisible to you, but it’s life or death to these children.





Learn More About the Firefly Fund