Rare Disease Isn't Rare
Over 30 million Americans are estimated to be living with a rare disease
Rare Disease Isn't Rare
There are over 7000 known ‘rare’ diseases
Rare Disease Isn't Rare
Receiving a rare disease diagnosis can be a multi-year ‘medical odyssey
Firefly Fund: Ending the Diagnostic Odyssey for Rare Disease Patients
Watch our new video capturing the spirit of our mission – inspired by rare disease parents racing to find medicine to save their children – who, in the process, were…Read More
Matthew McConaughey on the importance of the Firefly Fund
Matthew McConaughey shares a note on the Firefly Fund, a nonprofit organization based in Austin, TX. Our mission is to fund and support the research and education necessary to accelerate…Read More
Latest News & Events
Firefly Fund’s Pam and Chris Andrews Featured on Austin Next Podcast
October 2, 2024 (AUSTIN NEXT) Pam and Chris Andrews joined Jason Scharf’s podcast, Austin Next, a podcast exploring emerging trends, technologies, and their convergence. The episode highlights Firefly Fund’s vision…Read More
Austin Family Optimistic After FDA Approves New Drugs
October 6, 2024 (FOX) – Two Austin sisters are fighting a rare genetic disorder, but the recent FDA approval of two new drugs is offering the family a promising path forward….Read More