In 2024, the Firefly Fund announced a pledge of $5 million as the founding sponsor of the groundbreaking Center for Rare Disease (CRD) at the University of Texas Dell Medical School.

Goals of the Center

  • Bring an end to the interminable diagnostic odyssey rare disease families endure
  • Leverage infrastructure across the University of Texas System and the expertise of UT Dell Medical School to transform the landscape of rare disease research, diagnosis,
    and treatment in Austin, Texas
  • Accelerate innovative approaches to research, care and cures for pediatric rare diseases, both locally in Central Texas and worldwide