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  • About Us
    • Overview
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  • About NPC
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Newsletter Archive

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Latest News & Research

  • Austin American-Statesman Features Firefly Fund’s Work in Newborn Screening

    The Austin American-Statesman featured Firefly Fund’s work on newborn screening for NPC. The online article highlighted the ScreenPlus program, that with Firefly Fund’s support, recently launched at Children’s Hospital at…Read More

  • Firefly Chat Episode 6: Mallinckrodt Pharmaceuticals

    Firefly Fund founders Pam and Chris Andrews chat with the Mallinckrodt team. Dr. Steve Romano, Elissa Cote, and Sheila Talafous share their journies to joining the Mallinckrodt team, how rare…Read More

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