What is NPC?

Firefly Fund’s founders and the researchers from the scientific community share an overview of Niemann-Pick Disease Type C (NPC) inviting supporters to help advance the organization’s mission to accelerate a…Read More

Firefly Fund: Ending the Diagnostic Odyssey for Rare Disease Patients

Watch our new video capturing the spirit of our mission – inspired by rare disease parents racing to find medicine to save their children – who, in the process, were…Read More

Matthew McConaughey on the importance of the Firefly Fund

Matthew McConaughey shares a note on the Firefly Fund, a nonprofit organization based in Austin, TX. Our mission is to fund and support the research and education necessary to accelerate…Read More

Dan Rather speaks on behalf of the Firefly Fund

Your donations fund crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children and currently have no cure.

Firefly Fund Supports Newborn Screening for NPC

Help Firefly Fund get Niemann-Pick Disease Type C added to newborn screening lists. Knowing sooner is better! Donate now at www.fireflyfund.org.

Firefly Fund: Shining a Light on Rare Disease

Firefly Fund is committed to advancing and accelerating access to life-saving and disease modifying therapies for rare genetic diseases that affect children and currently have no cure.