Cody & Kayla Elgin, Texas

“Thank you to the Firefly Fund for treatments closer to home. It has been such a big stress relief for our family since Cody and Kayla started receiving their treatments in Austin at Dell Children’s Medical Center. Traveling to the NIH every month was exhausting for our family and caused longer recovery times for Cody and Kayla. Thank you for creating the Patient Access Fund and working to ease the burden of life with a rare disease.”