“On its own, a firefly produces but a small speck of light in the darkness. A whole community of fireflies, however, can light up the night sky. That is what the work of the Firefly Fund represents to our family. A whole community of parents, friends, researchers, and doctors working together to illuminate the darkness of rare disease. We fight together not just for the children living with rare disease now but for all that have come before and, through newborn screening initiatives and better treatment options, for future generations.”

Meghann Ferguson, Mom to Liam Ferguson, Age 5 Meet Other NPC Families