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  • About Us
    • Overview
    • Our Leadership
    • Our Story
  • About NPC
  • Programs
  • Our Donors
  • Our Families
  • News & Events
    • News
    • Upcoming Events
    • Event Photos
    • Newsletter Archive
    • Podcasts
  • Contact
    • Contact Firefly Fund
    • Share Your Story

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Latest News & Research

  • Firefly Fund Commits $500K to Novel Newborn Screening Study That Will Help Identify Rare Diseases at Birth

    FOR IMMEDIATE RELEASE: May 10, 2021 CONTACT:  Pam Andrews pam@fireflyfund.org Austin Nonprofit Commits $500K to Novel Newborn Screening Study That Will Help Identify Rare Diseases at Birth  Pilot Study enrolls…Read More

  • Firefly Chat Episode 7 (Part 2): NPC Moms React to Adrabetadex News

    A continuation of Firefly Fund co-founder Pam Andrews’ discussion with NPC moms, highlighting the benefits of Adrabetadex. The moms share their fears about a future without the medication, the popular…Read More

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