Firefly Fund Supports Newborn Screening for NPC

Help Firefly Fund get Niemann-Pick Disease Type C added to newborn screening lists. Knowing sooner is better! Donate now at www.fireflyfund.org.

NEWS RELEASE

FOR IMMEDIATE RELEASE February 27, 2024 Firefly Fund Announces $5 Million Gift to Create Center for Rare Diseases at UT Austin Dell Medical School Austin, Texas – To mark World…Read More
Firefly Fund Commits $500K to Novel Newborn Screening Study That Will Help Identify Rare Diseases at Birth

FOR IMMEDIATE RELEASE: May 10, 2021 CONTACT: Pam Andrews pam@fireflyfund.org Austin Nonprofit Commits $500K to Novel Newborn Screening Study That Will Help Identify Rare Diseases at Birth Pilot Study enrolls…Read More

Center for Rare Diseases Unveiled