Firefly Fund’s founders and the researchers from the scientific community share an overview of Niemann-Pick Disease Type C (NPC) inviting supporters to help advance the organization’s mission to accelerate a cure for children and families living with this devastating disease.
October 2, 2024 (AUSTIN NEXT) Pam and Chris Andrews joined Jason Scharf’s podcast, Austin Next, a podcast exploring emerging trends, technologies, and their convergence. The episode highlights Firefly Fund’s vision…Read More
October 6, 2024 (FOX) – Two Austin sisters are fighting a rare genetic disorder, but the recent FDA approval of two new drugs is offering the family a promising path forward….Read More