What is NPC?

Ahead of World Rare Disease Day 2020, Firefly Fund’s founders and researchers explain about Niemann-Pick Disease Type C (NPC) and how you can join the flight to help fund and…Read More

Matthew McConaughey on the importance of the Firefly Fund

Matthew McConaughey shares a note on the Firefly Fund, a nonprofit organization based in Austin, TX. Our mission is to fund and support the research and education necessary to accelerate…Read More

Dan Rather speaks on behalf of the Firefly Fund

Please consider making a donation at Firefly.Fund/JoinTheFlight. Your donations fund new drug therapies that can slow the progression of Niemann-Pick Disease Type C and other neurodegenerative diseases that cut short…Read More

Firefly Fund Supports Newborn Screening for NPC

Help Firefly Fund get Niemann-Pick Disease Type C added to newborn screening lists. Knowing sooner is better! Donate now at www.fireflyfund.org.

Firefly Fund: Shining a Light on NPC

Firefly Fund is a global leader in providing support, resources, and reassurance to families living with rare neurodegenerative genetic diseases like Niemann-Pick Disease Type C that affect children and currently…Read More