What is NPC?

Ahead of World Rare Disease Day 2020, Firefly Fund’s founders and researchers explain about Niemann-Pick Disease Type C (NPC) and how you can join the flight to help fund and…Read More

Matthew McConaughey on the importance of the Firefly Fund

Matthew McConaughey shares a note on the Firefly Fund, a nonprofit organization based in Austin, TX. Our mission is to fund and support the research and education necessary to accelerate…Read More

Dan Rather speaks on behalf of the Firefly Fund

Your donations fund crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children and currently have no cure.

Firefly Fund Supports Newborn Screening for NPC

Help Firefly Fund get Niemann-Pick Disease Type C added to newborn screening lists. Knowing sooner is better! Donate now at www.fireflyfund.org.

Firefly Fund: Shining a Light on Rare Disease

Firefly Fund is a global leader in providing crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children and currently have no cure.