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Latest News & Research

• Firefly Fund Announces $5 Million Gift

  FOR IMMEDIATE RELEASE February 27, 2024 Firefly Fund Announces $5 Million Gift to Create Center for Rare Disease at UT Austin Dell Medical School Austin, Texas – To mark World…Read More

• Texas Infant to Become Fifth Child to Receive Life-Saving Gene Therapy Treatment on U.S. Soil

  DALLAS, Feb. 05, 2024 (GLOBE NEWSWIRE) — Sufyan Pashai, a 4-month-old from Dallas, will travel to Minnesota and become the fifth child to receive life-saving gene therapy treatment on U.S….Read More