Global Genes’ RARE Daily Features Firefly Fund Co-Founder & Executive Director Pam Crowley Andrews

International rare disease organization Global Genes recently interviewed Firefly Fund Co-founder and Executive Director Pam Crowley Andrews for a profile in Global Genes’ online publication, RARE Daily. The piece features…Read More

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Firefly Fund Joins National Effort to Give a Voice to NPC Patients

Firefly Fund was proud to partner with the Ara Parseghian Medical Research Fund and other NPC patient-inspired foundations such as Dana’s Angels Research Trust, Hope For Marian, National Niemann-Pick Disease…Read More

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Firefly Fund is Buzzing With Activity

It is hard to believe Firefly Fund is coming up on our third anniversary. Ahead of Global Niemann-Pick Disease (NPC) Awareness month in October and a number of other exciting…Read More

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