Opportunity for NPC Families to Volunteer for NBS Initiative: Call for Participation from the NPC Newborn Screening Working Group

The NPC community is engaged in a multi-stakeholder effort to add NPC to newborn screening lists across the country. Since adding NPC to these lists would mean that all newborns would…Read More

Read More
Firefly Fund Postpones Annual Newborn Screening Clinical Roundtable Amid COVID-19 Concerns

Following the advice of our nation’s public health experts and recognizing the rapidly evolving situation that we all find ourselves in both at work and at home, we have decided…Read More

Read More