People Magazine Features Firefly Fund in Documentary

The hopeful and valiant battle that the Firefly Fund  is  taking on was featured in the February 28th issue of People Magazine. The Andrews sisters’ diagnosis and story is told…Read More

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Pro Golfers to Support NPC1 Research

FORE! Their Future… Help Light the Way. Joslyn and Sean Dobson invite you to join them and other Fund supporters for an exclusive event to raise awareness and funds for…Read More

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Firefly Fund Inaugural Event

Please join us to celebrate the inauguration of the Firefly Fund! Tuesday, February 28, 2017 6:00 – 8:00 pm 3TEN AUSTIN CITY LIMITS LIVE 310 W. Willie Nelson Blvd. #1A Austin,…Read More

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Clinical trial giving one family hope

Dell Children’s Medical Center is giving families hope by opening up the state’s first clinical trial facility to treat an extremely rare condition. Niemann-Pick Type C1 disease is a genetic disorder that…Read More

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