Firefly Fund Releases Inaugural Report to Donors

We are excited to present our donors with this inaugural report and hope you are as proud as we are of the progress we’ve made over the last three years….Read More

Read More
Meeting the Newborn Screening Requirements

The NPC community is engaged in a multi-stakeholder effort to add NPC to newborn screening lists across the country. Since adding any new condition to these lists would mean that any newborn…Read More

Read More