Firefly Fund Joins National Effort to Give a Voice to NPC Patients
Firefly Fund was proud to partner with the Ara Parseghian Medical Research Fund and other NPC patient-inspired foundations such as Dana’s Angels Research Trust, Hope For Marian, National Niemann-Pick Disease…Read More
Read MoreFirefly Fund is Buzzing With Activity
It is hard to believe Firefly Fund is coming up on our third anniversary. Ahead of Global Niemann-Pick Disease Type C (NPC) Awareness month in October and a number of…Read More
Read MoreToday we reaffirm the mission of the Firefly Fund
There are pivot days. Days that change your life. Some days you mourn. Some days you celebrate. Â Of course, March 10th, 2016 is the day we began this journey. Two…Read More
Read MoreAustin’s Fox 7 News Highlights the Andrews Sisters on World Rare Disease Day
Fox 7 News in Austin shared the story of Belle and Abby to mark World Rare Disease Day, which coincides with the one year anniversary of the launch of the…Read More
Read MoreWarrior Sisters–An Update from Pam & Chris Andrews
Warrior Sisters. That is how I would describe my incomparably beautiful daughters, Belle and Abby. They are both brave and strong and kind and trusting and warm and gentle yet…Read More
Read MoreBelle & Abby Celebrate Dell Children’s Medical Center’s 10th Anniversary
The Andrews family was grateful to share in the celebration of the 10th anniversary of Austin’s Dell Children’s Medical Center. The whole staff at Dell Children’s have been an integral…Read More
Read MoreAndrews Family Featured on Fox News in Phoenix, Arizona
Fox News in Phoenix, Arizona featured Belle and Abby in a story about NPC. The six-minute video segment highlighted the connection between the Andrews and Parseghian families as they work…Read More
Read MoreBelle and Abby’s Story Shared Overseas
Sending thanks across the pond to Closer magazine in England, which profiled the Andrews family and shared their heartfelt story. Â The two-page spread in the print edition of the magazine…Read More
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