Firefly Fund Marks 10 Years, Honors Dr. Kristina Jülich with Inaugural Firefly Luminary Award

FOR IMMEDIATE RELEASE: February 23, 2026 CONTACT: Pam Andrews, pam@fireflyfund.org Firefly Fund Marks 10 Years, Honors Dr. Kristina Jülich with Inaugural Firefly Luminary Award AUSTIN, TX – Firefly Fund, a nonprofit…Read More

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OpEd: Proposition 14 Offers Hope Against Dementia for Families

October 10, 2025 | Austin American-Stateman Check out today’s Austin American-Statesman OpEd by Firefly Fund co-founders Pam and Chris Andrews. Proposition 14 is a vote for compassion, innovation and Texas…Read More

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Pam & Chris Andrews featured in RARE Revolution

September 8, 2025 | We’re excited to share a new interview with Pam & Chris Andrews in RARE Revolution Magazine. A huge thank you to Nicola Miller for capturing our…Read More

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Survey of NPC Families and Caregivers

July 21, 2025 | The International Niemann-Pick Disease Alliance is asking for the Niemann-Pick community’s participation in a study underway. The study is funded by Niemann-Pick UK and designed to…Read More

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Firefly Fund’s Pam and Chris Andrews Featured on Austin Next Podcast

October 2, 2024 (AUSTIN NEXT) | Pam and Chris Andrews joined Jason Scharf’s podcast, Austin Next, a podcast exploring emerging trends, technologies, and their convergence. The episode highlights Firefly Fund’s…Read More

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FDA approves Aqneursa for NPC

September 24, 2024 | FDA approves Aqneursa for NPC Yesterday, the FDA approved AQNEURSA, a second therapy for NPC patients. This approval highlights the power of collaboration and partnership. For…Read More

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FDA approves Miplyffa for NPC

September 25, 2024 FDA approves Miplyffa for NPC Today is a monumental day for the NPC Community and the first thing Chris and I wanted to do was share it…Read More

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